What the heck are the “Twisties”

GETTING THE “TWISTIES” – Just like Simone Biles in the Olympics

You may remember that in 2021, one of America’s most loved gymnasts suddenly faltered in a dismount from her balance beam routine.

Simone Biles startled the world by withdrawing from several events to prioritize her mental and physical well-being.

Known as ‘the Twisties,’ this mental block causes gymnasts to lose their spatial awareness while performing aerial maneuvers, making it difficult to control their bodies and land safely.

Biles described the sensation as feeling “lost in the air” and likened it to losing control of a familiar car. The Twisties can be triggered by various factors, including environmental changes, stress, and psychological pressures.

In Biles’ case, she mentioned feeling stressed even before arriving in Tokyo, which may have contributed to the onset of the Twisties. Biles’ experience with the Twisties sparked essential conversations about mental health in sports and the pressures faced by elite athletes.

She recovered and will participate in the 2024 Olympics demonstrating resilience and a continued passion for the sport.

I had a similar condition.   I had a stroke in 2021 and lost my sense of balance.  I would fall for no reason, feel unsafe, and need help managing steps and simple walking.

I learned balance therapy is big business now due to its effectiveness in addressing balance disorders, especially among older adults.

It focuses on retraining the brain to process sensory information from the vestibular system, vision, and proprioception to improve stability and reduce fall risk.

I’ve had seven physical therapists in four different physical therapy clinics help me re-learn my balance. I learned it is not in my feet and legs but in my brain. Those neuropathways automatically telling me which way to step, turn, or lift a foot had to be “re-grooved” in my brain.

The only way that happens is through repetition. My favorite therapist used to say, “Now do it one more time—the first time is for muscle memory, the second time is for the brain.”

Wow, what a learning experience.  Do I have my balance back?  Yes, for the most part, but I still have trouble stepping backward, raising my arms while  moving my feet simultaneously, and going in a circle.

When I tell my friends I can’t do these things, they say, “Well, now that I think of it, neither can I!”  It makes me feel better. ❤️

WORDS MATTER – Especially when it comes to your Heart

“Are you having any chest pain?” This is the first question I’m asked at every cardiologist visit.

“No, sometimes I have a dull ache in my collarbone though,” is my reply.

I finally learned that dull ache in my collarbone is MY form of Angina, which is a type of chest pain caused by reduced blood flow to the heart.

It’s common for women to have different symptoms of heart attack than men – I learned that in my training at Mayo Clinic. It’s the cornerstone of my heart talks telling about and describing our symptoms.

Here’s Mayo Clinic’s list: Neck, jaw, shoulder, upper back or abdominal discomfort; Shortness of breath; Pain in one or both arms; Nausea or vomiting; Sweating; Lightheadedness or dizziness; Unusual fatigue.

What I didn’t realize is it also common for women to use a plethora of descriptive language like “pressure, fullness, tightness” instead of the word pain.

The difference is men actually often have crushing chest pain and will say so very succinctly.  Doctors and medical staff understand the words “chest pain” but often can’t relate to our atypical or weird explanations.

I know pain. I’ve had a knee replaced, delivered two babies in the old days (1966 and 1970), had four dental implants (before it was quick & easy), and the most painful pain I ever experienced was having breast implants removed.

So I know pain, I know excruciating pain and a dull ache in my collarbone is not pain and “excuse me, it’s not in my chest, it’s in my collarbone!”

My heart sister, Robin Olson, put up with three days of agonizing pain in her shoulder. Finally, she went to the ER at the hospital where she worked for the pain.

“They told me I was having a heart attack. I said, no I’m not! I just have a pinched nerve!” She proceeded to get three stents that day.

Some of the stories I’ve heard from other heart sisters include going to the dentist to find the tooth causing jaw pain. Or, crushing fatigue and upper back pain, pain in the wrist, upper lip numbness, and a persistent cough.

Don’t get me wrong, some women do have chest pain radiating down their arm like heart sister, Karen Sammer. She was lucky because she was at a Toastmasters meeting held in a meeting room at the hospital.

Her pain was diagnosed as SCAD (Spontaneous coronary artery dissection) which is where a piece of the artery tears away and clogs it just like plaque might.  She was lucky to receive fast care.

I blame those “Hollywood” heart attacks we see in the movies of men clutching their chests and collapsing from extreme chest pain. They fill our heads with what a heart attack looks like – and that is always Chest Pain.

I believe we women just can’t say those words, mainly because our discomfort is often not in our chest but in what we think of as a non-related area. But if we don’t say the words “chest pain” we may not receive the kind of care we need.

It seems to me, the answer lies in the medical community hearing our words and recognizing symptoms from our weird (to them) descriptions of discomfort.

I know pain, and that dull ache was just an inconvenient discomfort on a day I was too busy to be bothered with a little ache. So I did what we women do best – push through it so we can finish our errands, our project, our trip, whatever it is we’re doing.

Next time you’re asked, “are you having chest pain” – describe your discomfort as something you know is a symptom for heart attack in women.

Also, use strong descriptive words and tell how it is affecting your lifestyle. (for example I could say, “my collarbone is aching and I believe that type of discomfort in my upper body could be a symptom of heart attack in women”) Name the exact location of the discomfort, point if you must. Don’t minimize your symptoms and never be embarrassed.

Remember your words matter, especially when it comes to your heart!

HEART BROKEN

HEART BROKEN
I broke my heart in 2018, not from a lost love but because it really broke.
Have you ever broken a bone? My sister broke her leg on the ski slopes once. I was skiing right next to her on the same slope, yet my leg did not break.
She was taken into a nearby Colorado town to the hospital. There a doctor set her leg, put it in a cast to heal and said, “You’ll be good as new in six weeks”.
If you break your heart the doctor can fix some things but you’re not quite good as new. The “fix” is often a tiny little stent inserted into your artery while in a “Cath Lab” at the hospital.
I have two, some people have four or five. I met a guy once who has nine.
I joined the ranks of fixed repaired hearts on a sunny Saturday in February. It was my birthday, I was terrified because when they said heart attack, I was sure I would die.
When you get this kind of fix, somehow you believe your heart will go back to normal, but with many of us heart patients, there’s damage. Even though that artery is working, it is not back to full capacity.
After heart failure, my life changed forever. Each day of my hospital stay, I heard from either a doctor or a nurse about pills with long names, special diets to keep sodium and cholesterol levels at bay, exercises to strengthen my body and my heart, and a contraption called a defibrillator life vest.
The phrase “new normal” was bantered around like a volley ball. I began to cry. A soft-spoken cardiac nurse said “What’s wrong”?
I blubbered, “I don’t know what to do. I had a heart attack and it was fixed but I don’t feel like it! I want to feel normal but I don’t”!
If I could have stomped my foot I would. I was pissed off.
The more I thought about, the emotions started to boil. Why was I so angry? She was quick to reply, “this is normal. You will feel a roller coaster of emotions now and all during your recovery”.
I wiped my eyes and looked into her thoughtful face while she said, “you are suffering grief – grieving the life you think you’re losing”.
The tears began again, “Will I ever be normal again? Will my heart be normal”?
She calms me by saying, “you will get to a new normal, but your heart has damage from the heart attack. I can’t say how this damage will affect your daily life, but I can tell you, you may feel depressed at some point. When you do, get help.”
“For now, get some rest, you’re in good hands”, and left the room silently.
I slept, I dreamed, I thanked God for saving my life, I filled my heart with gratitude to tamp down the anger. I allowed my sadness and grief.
The day I was released, I wanted to jump for joy but couldn’t because I was too weak, needing a walker to get home and then inside my own house getting from room to room.
Now two years later, my heart pumps to its own beat. I still catch emotions rising. Is this my new normal?
I wish for my kindly cardiac nurse to appear, soothe my brow, and say “Yes, dear, it is”.